For a good 9 months now my Jra has been flaring but 6 of those months showed no inflammation indicator for my doctors to say well somethings not working. 3 months ago i go for my rheumatologist visit and explain tht i don't think the orencia is working i dont feel good! the answer well ur blood work from 3 weeks ago looks good lets wait and see about the orencia..HUH!!!!! 3 months later...I'm worse..I have to take pain pills everyday just to function, im tired and all i want to do is feel better! So i visit the doc yesterday and guess what the bloodwork from 3 months ago i had done after my visit SHOWED INFLAMMATION! For two months I got worse when i could be on a med by now feeling better! Uggghhh Ive had jra for 14 yrs now i think i kno my body by now...doctors listen to us! So now i'm trying a new medicine BUT..it must be approved first..so all of this means that i have at least another month til possibly any feeling better is gonna happen. although im used to this its never easy to just be in pain everyday all the time..all over your body. You almost don't want to breathe cause just doing that causes pain. I miss out on hanging with my friends and everyone thinks cause ur not well enough to go out that ur not well enough for them to come over. Thats a complete lie. If u have a friend or family member that is stuck home because of a physical ailment offer to come visit. it would make us happier than u know!
so for now i just have to wait and let the health system do their thing...I pray that the pain lessons be4 then and i can get back to pursue my acting and being with my friends.
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Hi there,
I stumbled across your blog looking for information about people using Enbrel and other drugs for JRA. I'm 22 years old and I was diagnosed with Polyarticular JRA when I was 18 months old, and I am totally relating to pretty much everything you've written about it. I'd love to be able to talk to someone who's going through the same thing I am, because although I have really supportive friends, they just don't get what it's like to live with this disease. My email address is sarahbring@insight.rr.com, or I have AIM and I'm on there a lot, my screen name is sarahxtard.
Hope to hear from you! =]
-Sarah
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